So as many of you know from my Facebook page, I started vomiting again at 10 weeks post op. For those of you who are not on Facebook, here’s where I’ve been and whats been happening ! I was admitted to my local hospital with severe dehydration in September and after a massive 15 WEEKS (!!) […]Continue Reading... Comments Off on Gastroparesis
It’s been 9 weeks since I had my third major ear surgery to fix my SSCD. Despite still having ups and downs I’ve had a pretty good week! I’m continuing to see positive changes, especially with my walking and balance. My dizziness is still bad and I’m forever working against it to try and put […]Continue Reading... Comments Off on 9 weeks post surgery !!
7 weeks post op and the walker has been replaced with a hiking stick ! This was recommended by my vestibular therapist in Boston, who has been sending me detailed plans on a weekly basis (she’s amazing!). I may look like I’m hiking in my garden (😂) but really this walking business is still so […]Continue Reading... Comments Off on Hiking.
Today has been one of those ‘good’ days. Got to spend some time out in the sunshine and saw a friend who bought me beautiful flowers! My balance feels like it’s getting stronger and I feel so much more stable on my feet. My sound sensitivity has gone. I still have constant pulsatile tinnitus but there’s […]Continue Reading... Comments Off on Good days
I was sat with Tom yesterday having one of my ‘not so good days’. He asked me what my goal for the week was. I said I didn’t really have one as its nearly impossible to achieve them feeling like this. Then we started talking about cakes(like you do!). I thought about how much I […]Continue Reading... Comments Off on 6 weeks post surgery
So tired that I can barely keep my eyes open! But after 5 weeks in Boston I’m finally home. With a cup of tea. Ready to sleep the week alway! Journey was hard to say the least but the most challenging bits are over now. Can’t believe I’ve done it. 2 years of being ill, […]Continue Reading... Comments Off on Home sweet home…
Another very successful trip to Massachusetts Eye and Ear ! Saw the vestibular therapist/physio who was on a whole other level to anyone I have ever seen for my condition back in England. She had a huge amount of experience in treating people before and after their SCD surgery. Even complicated ones like me 😁 […]Continue Reading... Comments Off on Vestibular therapy
Week 3 post op today. Had a good week seeing amazing people! Finally got to meet my beautiful SSCD friend after 9 months of knowing each other. We met on a SSCD support group just after our first surgeries and have spoken everyday since. One of the many special friends I have met on this journey […]Continue Reading... Comments Off on Surprise visits!
Two weeks post op and I’ve been discharged from hospital. And look what just happened !! Today I walked to the front deck of our hotel and back again. Massive step forward !! The sickness continues to improve everyday which means I can walk more. The dizziness feels different since the surgery. I can’t quite […]Continue Reading... Comments Off on Hotel home
Feeling beyond exhausted right now BUT have still achieved my ‘mission’ of walking and looking down the corridor. Walking is getting so much easier. Still fighting this nasty sickness which is obviously the one thing stopping me from getting out of here. Focusing on the positives though and can’t believe how much has improved already 👍 Also got […]Continue Reading... Comments Off on Standing stronger everyday.