• Gastroparesis

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    So as many of you know from my Facebook page, I started vomiting again at 10 weeks post op. For those of you who are not on Facebook, here’s where I’ve been and whats been happening ! I was admitted to my local hospital with severe dehydration in September and after a massive 15 WEEKS (!!) […]

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  • 9 weeks post surgery !!

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    It’s been 9 weeks since I had my third major ear surgery to fix my SSCD. Despite still having ups and downs I’ve had a pretty good week! I’m continuing to see positive changes, especially with my walking and balance. My dizziness is still bad and I’m forever working against it to try and put […]

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  • Hiking.

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    7 weeks post op and the walker has been replaced with a hiking stick ! This was recommended by my vestibular therapist in Boston, who has been sending me detailed plans on a weekly basis (she’s amazing!). I may look like I’m hiking in my garden (😂) but really this walking business is still so […]

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  • Good days

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    Today has been one of those ‘good’ days. Got to spend some time out in the sunshine and saw a friend who bought me beautiful flowers! My balance feels like it’s getting stronger and I feel so much more stable on my feet. My sound sensitivity has gone. I still have constant pulsatile tinnitus but there’s […]

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  • 6 weeks post surgery

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    I was sat with Tom yesterday having one of my ‘not so good days’. He asked me what my goal for the week was. I said I didn’t really have one as its nearly impossible to achieve them feeling like this. Then we started talking about cakes(like you do!). I thought about how much I […]

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  • Home sweet home…

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    So tired that I can barely keep my eyes open! But after 5 weeks in Boston I’m finally home. With a cup of tea. Ready to sleep the week alway! Journey was hard to say the least but the most challenging bits are over now. Can’t believe I’ve done it. 2 years of being ill, […]

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  • Vestibular therapy

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    Another very successful trip to Massachusetts Eye and Ear ! Saw the vestibular therapist/physio who was on a whole other level to anyone I have ever seen for my condition back in England. She had a huge amount of experience in treating people before and after their SCD surgery. Even complicated ones like me 😁 […]

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  • Surprise visits!

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    Week 3 post op today. Had a good week seeing amazing people! Finally got to meet my beautiful SSCD friend after 9 months of knowing each other. We met on a SSCD support group just after our first surgeries and have spoken everyday since. One of the many special friends I have met on this journey […]

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  • Hotel home

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    Two weeks post op and I’ve been discharged from hospital. And look what just happened !! Today I walked to the front deck of our hotel and back again. Massive step forward !! The sickness continues to improve everyday which means I can walk more. The dizziness feels different since the surgery. I can’t quite […]

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  • Standing stronger everyday.

    Posted on January 13, 2016 by Beth Rye in Uncategorized.

    Feeling beyond exhausted right now BUT have still achieved my ‘mission’ of walking and looking down the corridor. Walking is getting so much easier. Still fighting this nasty sickness which is obviously the one thing stopping me from getting out of here. Focusing on the positives though and can’t believe how much has improved already 👍 Also got […]

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