This summer marks 2 years since my surgery in Boston! In 2015 I had my surgery with Dr Lee to fix SCD and last summer I returned for my follow up and vestibular therapy at MEEI. I might not be better (yet) but this place has changed my life! Miss Boston summers SO much ❀ It […]Continue Reading... Comments Off on 2 year post op in Boston!
I am now 3 weeks into my treatment! I don’t really know how to express into words how hard this trip has been. I have never felt so utterly drained and empty inside… I knew this was going to be tough but I honestly don’t think anything can prepare you for how difficult this really is. […]Continue Reading... Comments Off on A different kind of NY Christmas…
Treatment update** For those of you who don’t already know! I am not having Lyme disease treatment in the U.K. This was a decision I made soon after my diagnosis and realising the horrifying truth about the care of people living with what can be an incredibly debilitating chronic illness. A tick bite can be […]Continue Reading... Comments Off on U.S.A. 3rd time lucky
It’s taken me a long while to get my head round writing this post because I think it’s the most complicated out of all of them (just when you think I can’t get anymore complicated…?!). As some of you know I had mixed results from the vestibular therapy in the summer, yes my balance has […]Continue Reading... Comments Off on Chronic Lyme disease – the final piece of my health jigsaw!
It’s been a long time since I posted on here so here’s an update for those who are not on Facebook! But firstly, I just wanted to show off how good my balance has got now I can almost tip toe along this little wall! Next I’ll be running, right?! I’ve gone through many more ups […]Continue Reading... Comments Off on Beth Rye the never ending Medical Mystery
If only I could pretend that everything is fine. Real life is never easy, not to mention when we are sick. Most days I am OK and I can deal with my symptoms, but very rarely there are days where I can’t cope at all. Where I hate that this ever happened to me. Over […]Continue Reading... Comments Off on Coping with a chronic illness
Made it back from a 4 day long trip to London. What a roller coaster! Yesterday I had to trek to 3 different hospitals which was absolutely exhausting and made me pretty sick (I don’t do good with car journeys). BUT I gained so much from it. Firstly, I got to see an ENT professor […]Continue Reading... Comments Off on London round 2
Right, I’m going to attempt to explain what is a very complicated jigsaw puzzle here. Me being this jigsaw puzzle! As most of you know, I haven’t recovered as expected from my SCD surgery because I got sick at around 10 weeks post op. This was recently put down to a condition called gastroparesis. Many […]Continue Reading... Comments Off on Life as a jigsaw puzzle
‘Eat well, live better’. This quote is far easier said than done when you are living with gastroparesis. Yet it is still more important than ever. Every little bite & every sip you take needs to be a nutritious one. Not wasted on high processed and sugary junk. Again, this is NOT easy when certain […]Continue Reading... Comments Off on Alternative Therapy
6 months post surgery 🙌🏼 Such an unexpected few months. Things have improved in so many ways yet gone so backwards in others. My balance continues to amaze me with the improvements I see on a weekly basis. This week I even made it my favourite hair salon! This was my first salon trip since […]Continue Reading... Comments Off on 6 months post op!