It’s been 9 weeks since I had my third major ear surgery to fix my SSCD. Despite still having ups and downs I’ve had a pretty good week! I’m continuing to see positive changes, especially with my walking and balance. My dizziness is still bad and I’m forever working against it to try and put it right .. This makes the smallest of things so exhausting. I do my vestibular exercises when I can and have found that they are getting slightly easier, so this must be a sign that things are heading in the right direction.
Hopefully this time next month I’ll be back at Massachusetts Eye and Ear to have my audio and balance tests re done to see if anything has changed since the surgery. I’ll also get to see Dr Lee and my vestibular therapist.
Although things are going pretty well it’s still incredibly difficult for me to still be ‘stuck’ feeling constantly dizzy. It gets in the way of everything and there’s nothing I can do to get away from it. This week is balance awareness week which aims to help people like me who struggle with debilitating dizziness and balance conditions. Balance conditions can be totally life changing and affect pretty much every aspect of a persons life. A lot
of things become impossible. Having a diagnosis is often the first step to recovery. Vestibular Disorders Association (VEDA) & The Meniere’s Society aim to help dizzy people find help, and most importantly, a diagnosis and treatment. Sadly a lot of people get miss diagnosed or just told ‘to get on with life’ (just like I was). Raising balance awareness is just so important and I hope my story helps people one day. After a two year battle with SSCD I’ve finally been given the best chance of being dizzy free. Everyone deserves that chance! You can head over to vestibular.org for more information of how you can help during balance awareness week.