• Spring time

    Who’d have thought that just getting into the garden on a beautiful sunny day would be such a challenge. As we hit spring time and the sun starts to beam through my windows I find it more and more difficult to deal with my situation. Getting downstairs in itself makes my symptoms much worse(and is a definite safety hazard- imagine walking/wobbling downstairs after a few too many vodka and gins….). Anyway, I faced that fear today and managed to spend a couple of hours in the garden surrounded by bird noises, sunshine and my family ! 

    Heart Flowers


    When you’ve been stuck inside for so long, this is just an incredible feeling. Now back indoors, my dizziness is worse and I am exhausted. How do I cope with all this? I’ll write about this in another post, but everyday I remain hopeful about the future and finding the right treatment for my condition. 

    Love the sunshine!


    Yes my life is unbelievably limited, but I am supported by the most amazing people, who give me the positivity I need to fight through each day, and who give me the determination to get on with life as best I can. So here’s to more moments in the sunshine! ☀️☀️☀️

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